This weekend was the TSSS conference. And yet again I had another amazing year. I arrived on Thursday, had two naps on Friday, and slept all day Saturday. Dad had ordered me a new self propelling wheelchair to get around in, as I still cannot stand for more than a few minutes without my face going red or white, feeling dizzy, my hands and feet tingling and my head exploding. For the last few months I had been reluctant to use my clunky hospital style chair, and have paid for it on more than one occasion… I've still not learnt! I think the worst thing about using a wheelchair is psychological. Suddenly, my "invisible" illness is "visible". Having spent many years explaining to obnoxious passers by that I have a neurological condition, who have been known to say 'you must be joking!' to mum when she points to the disabled badge in the car, it's weird to suddenly be known from just a glance that you are disabled. Being able to control the chair myself was a big thing, but the biggest thing was allowing myself to accept it. Yes, I needed a chair to go long distances. No, it didn't mean I was lazy, or taking advantage of having one. But it reinstates in my mind that I am 'ill', that my condition has deteriorated. I am holding on to the fact that it won't be forever, and I am certain that I will be back to walking before I know it.
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| I rather love my onesie |
In the meantime, I'm looking for ways to jazz my chair up (sparkles and colour), and any ideas are welcome!!
On the the Saturday Night of conference I managed to go to the evening meal and disco. This years show was 'The Addams Family - AKA The Turner Family.' And seeing those girls blossom on stage has to be one of the best feelings in the world. This year I wasn't able to participate in the performance, but sitting back and watching the teens, women, parents, ladies, juniors, everyone who went on that stage, blew me away. It enabled me to reflect on just how far the TSSS family has come, and my pride went through the roof. It takes a lot of courage to sing, dance and act in front of an audience of 300, and I applaud each one of you. Well done.
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| Wednesday Addams Style! <3 |
My beloved Granny Ford died on Thursday. She was a feisty woman, as those of you who have read mums blog will know, and I will miss her very much. She taught me to knit, (at age 9), and in the last few months spent many lovely days out at blooms, knitting shops, and kenilworth. I inherited her vast collection of knitting needles (I do not think I shall be needing any more!), her beautiful stamp collection, and a jar of assorted old fashioned buttons. They will ALL be put to good use.
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| GF reteaching me to knit |
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| Gorgeous buttons, stamps and knitting needles! |
And finally, a bucket list update. I got my first manicure on Wednesday last week! Spa day next I hope.
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| I do love sparkles! |
